I had my repeat CT scans this week. I tried to remain calm. I went to work after my scans were done and tried to act normal. I felt better doing things. Busy was good.
I got the results early the next morning.
Better.
The lymph nodes that were there before measured a bit smaller. The conclusion: “No contrast-enhanced CT evidence of locoregional or distant metastatic disease. A prominent subcarinal lymph node and right hilar lymph nodes are largely stable in comparison to 5/14/2020.”
To put it plainly: Still not sure why these lymph nodes are enlarged. Maybe I had a bronchitis or allergies or something? They are not behaving like spread of my cancer.
That puts me back where I was before: The cancer could be completely gone. Or maybe not. I will continue with CT scans every 3 months and we will see.
Below is a blog that I wrote the week before I got my repeat CT scans. As usual, I wrote this as an honest expression of thought. I share it in the hope that others might identify and somehow it might be helpful.
The Dream
I couldn’t see.
I had that dream again last night.
It is a dream I have had many times in the past.
I am driving down the road and then suddenly I cannot see the road or anything in front of me. The dream I remember the most is driving at night in the rain. Suddenly everything is dark, and I cannot see the road. Last night the dream was driving in a snowstorm. I was following another car. I could see the car’s taillights. Suddenly the car slowed down. I assumed they were frustrated with me following them and wanted me to pass them. When I passed them however I was suddenly in a blinding snowstorm. I couldn’t see anything at all. I had just accelerated to pass them and was going at full speed and I couldn’t see.
It feels like I have closed my eyes. No matter how hard I try I can’t force my eyes open, or get them to clear enough so that I can see again. I know it is really bad. I am rushing down the road and I cannot see.
What do you do when you can’t see the road in front of you?
In the dream world, the answers may be a bit strange. I worried about slowing down too quickly because I had just passed the other car. I didn’t want to have him hit me. I felt like I had to keep driving. But yet, I couldn’t see anything. Certainly, I couldn’t continue to just drive forward without being able to see anything. I had to slow down. I had to do something.
I kept driving straight. I figured this was my best hope. Just keep going in the direction that I had been going in before I was no longer able to see. I hoped that I could somehow keep the car going straight down the road. I hoped the road would continue to be straight in front of me.
Slow down. I know it was foolish to keep moving. I needed to slow down in a controlled manner. If I was going to be running into disaster maybe it would be better if I wasn’t barreling toward it out of control.
Try to stop? This was what I thought I needed to do. Unless I were to regain some sight soon I should try to stop. This also seemed risky, however. I knew the other car was behind me and also likely to not be able to see me. It didn’t seem like it was an option. I had to just keep moving along.
Eventually in my dream, I came to a town. As I entered the town, things started to become visible. I saw houses and trees and then I could see the road again. I saw enough that I was able to pull over to the curb and stop and rest. When I did so, I began to think about all of the horrible things that could have happened to me in the storm. But they didn’t.
It is morning now. I am sitting alone in our sunroom and looking out the window. I can see. The early morning sun is soothing. The trees look beautiful. I breathed in deeply trying to take in the calm before I get ready for work. In that moment the dream came rushing back to me. I remember it suddenly in great detail.
Why do I have that dream?
Is it that I am currently driving forward and not sure where the road is going to go in front of me? Does it feel like my eyes are forced closed or frustratingly blinded?
I don’t feel stressed. I am not obsessing with worry. From a psychological standpoint I think I am fine. This dream comes as an unwanted intrusion on my understanding of myself.
But there is my upcoming CT scan to reassess some enlarged lymph nodes in my chest. I also have an ongoing issue with fatigue and lack of stamina. Where am I going? What is the future? I keep trying to see the road ahead. I blink and try clear my eyes and strain to see. No matter what I do, my vision is obscured.
That is not good. I am rushing down the road and I cannot see.
What do you do when you can’t see the road in front of you?
I keep driving straight. That seems the most logical thing to do. I will take whatever direction I was going in before the snow blocked my vision. I will just keep trying to point in that direction. I will just keep going on the same path. That is not a great answer, but it is the best that I have.
I think I should try to slow down. It doesn’t seem wise to be barreling ahead at full speed. The road might just suddenly turn in front of me.
But how do I slow down? What does that practically mean in how I live my life?
In my dream I cannot compel myself to push on the gas when I have lost my ability to see. So also, in my life I feel a loss of drive. I now see it is the exact same sensation. I cannot compel myself to push forward when I have lost my ability to see. I find myself pulling my foot off of the accelerator. It is not that I am stopping. But I just can’t make myself keep powering forward with the same intensity.
Earlier this week I was clearly getting frustrated with myself. In the past I have been driven by my calling and passion. I could push and push and push. But now, where is my drive? Where is my passion? Where is my energy? I find my foot is unable to push on the accelerator. My brain will not let me do it.
Can I stop? But just like in the dream, I don’t know where or how to safely stop. As odd as it is in the dream, I feel safer coasting along then I would if I slammed on the brakes.
In my dream the road didn’t turn. I miraculously didn’t drive off of the edge of a cliff or into a tree. Once I was able to see and then stop, I sighed a deep breath of relief. In that moment, I thanked God for guiding my car when I had no idea where the road was.
So also, now, in this moment I do the same thing. It is a helpless dependency. It is like driving at full speed and suddenly being unable to see. Maybe that is ok. Maybe that is what I am supposed to have in this moment. “Dear Lord, I cannot see. Please help me to not drive over the edge of a cliff.”
In my dream the town was a nice town. It wasn’t anything dramatic. But it was wonderful and soothing to have a place with people, and safety and the ability to pull over and stop and think. It was nice to be able to see again.
What is next? I wonder what the next town I am coming to is going to look like? I hope it is charming. I hope it has a curb with plenty of easy parking where I can stop for just a few minutes. I hope it has a lot of little shops and a real main street. Maybe we can get out and walk around and take a break for a little while. Then I will feel ready to climb back in the car and step on the accelerator again.
But for now, I drive on and try my best to control my car, even though I cannot see anything.
My CT scan showed no evident spread of my cancer. I am on summer vacation now.
For a moment my vision has cleared. I can see out of the windshield.
There is a nice little town. It has a parking space for us to stop. We are going to get out of the car and walk the street and look at the little shops. A little while later we will get back in our car and we will start driving again.